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Holden T, Henke E
Motor neurone disease - patients'' accounts of their illness
Nursing Times 1980, June 12, p1035-1036 and BMJ 1968 v4 p765-766 1980
£0.25

Up to the last few years, some MND patients spent the last few months of their lives at St Christopher''s Hospice. These are two short personal accounts of advanced MND by patients who were in the hospice for some time. Both provide advice to health professionals on how best to help patients with this condition, in particular how impaired speech can be dealt with. They also range over other difficulties such as tiredness and boredom - and how they personally cope with them.  
 
O''Brien T Kelly M et al
Motor neurone disease: a hospice perspective
BMJ 1992 v304 p471-3 1992
£0.20

This article is based on a study of retrospective case notes of MND patients at St Christopher''s Hospice. It outlines key issues in symptom control, and in particular states that no MND patient died because of choking. 


Oliver D Borasio GD et al
Palliative care in amyotrophic lateral sclerosis
Oxford University Press, 2000
Check price with Librarian

ALS is more commonly known as Motor Neurone Disease (MND) in the UK. This authoritative textbook is edited by doctors who have considerable long-term expertise in looking after MND patients in the UK (a number of articles have been written by current staff at St Christopher''s Hospice). It covers the control of symptoms by doctors as well as other members of a multidisciplinary health team. It also covers psychosocial care and the issue of advance directives. It includes models of care for MND in the UK, USA, Japan, the Netherlands and South Africa, and contains some personal accounts of the disease and useful websites for patients. It also contains a list of suppliers of equipment for care - addresses for this equipment in the UK and USA. 
 

Oliver D
Motor neurone disease - a family affair
Sheldon Press, 1995
£7.99

David Oliver is an expert on MND who has worked in UK hospices for many years. This is an excellent text for any individual who has MND, for families or carers of MND patients and for any lay person who wants to know more about how this illness affects those who have it. 

For further information and details please contact the Librarian, St Christopher''s Hospice

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