Hospice and Palliative CareAvailable from the Bookshop A selected list of items from the Halley Stewart Library at St Christopher''s Hospice relating to the history and development of the hospice movement. Palliative Medicine is one of the earliest journals to specialise in the subject of palliative care. It commenced publication in 1987, however its contents are only recorded in Medline from 1993. This is a list of articles, editorials and letters published in the journal from 1987 - 1993.
"In this collection of letters covering the period 1959-1999 and selected from approximately 7,000 letters that were in Cicely Saunders'' archives, we learn first-hand about the development of the modern hospice movement. We do not have copies of the correspondence to Cicely Saunders which makes this book ''cool'' in Marshall McLuhan''s sense: ''high in participation and completion by the audience''. The book reads like a detective story." Tom A Hutchinson, Professor of Medicine and Epidemiology, McGill University, Montreal. Journal of Pain and Symptom Management 2003 v26(4) p968. This article reviews the development of the concept of ''total pain'' as described by Cicely Saunders in her writings. The term is analysed and the author critiques the ways in which the idea can be interpreted. One of a number of articles written by David Clark related to a collection of her written articles and letters. This definitive biography of Cicely Saunders, founder of St Christopher''s Hospice and of the modern hospice movement. It was first published in 1984 and provides a comprehensive account of her life until then. It also provides a history of the hospice movement. In 1994, a new edition was published with an added chapter on euthanasia by Cicely Saunders herself. This biography is only available from St Christopher''s Hospice. Gunaratnam Y, Oliviere D (eds) Narrative and stories in health care. Illness, dying and bereavement Oxford University Press 2009 £29.95
David Oliviere is Director of Education and Training at St Christopher’s Hospice and Yasmin Gunaratnam is a lecturer in the Department of Sociology at Goldsmiths College, University of London. “Telling one’s story “ is one of the cornerstones of the development of hospice and palliative care. Cicely Saunders recorded over a 1,000 patient narratives and attributed them to the development of basic concepts in palliative care. The editors have gathered an internationally renowned group of writers to provide a wide-ranging commentary on further developments in this field. The book is divided into 3 sections 1) concepts and approaches 2)services and care 3)working with patients and carers Hartley N, Payne Malcolm (eds) This edited text covers all aspects of palliative day care, principally in a UK setting: needs assessment, establishing a service, psychosocial and medical issues, audit. It also contains a retrospective as well as prospective consideration of its role in palliative care. This short article describes recent user involvement activities at St Christopher''s Hospice. These short articles are by a carer and service user at St Christopher''s Hospice. This chapter on disability traces some of the history of disability in the UK and looks at the palliative care situations of people who experience intellectual or cognitive disabilities. Issues of inequality concerning access to and treatment by palliative care are discussed. The final part of the chapter gives guidance on developing responsive services. Linda McEnhill is Lecturer in Palliative Care at St Christopher''s Hospice and Co-ordinator of The National Network for the Palliative Care of People with Learning Disabilities (NNPCPLD). "The patients are the founders of the now accepted development of the speciality of palliative medicine." So Cicely Saunders writes in the introduction to this edited book. The concept is developed and placed in the context of the current emphasis on patient centred care by a variety of health experts and palliative care clinicians. The dangers of over-reacting to paternalism are also explored. Also included are contributions from two service users, one a patient and the other a carer. Some interesting points are made by these two authors: the devastation of loss of status in moving from experienced professional to disabled cancer patient can be offset somewhat by involvement as an expert service user; the importance of treating people individually cannot ever be underestimated; the service is often greatly appreciated; it is imperative to look at the views of people who have not received such good care; not all patients are voiceless - some are vociferous! The editors are the CEO and Director of Education at St Christopher''s.
The Polish artist Marian Bohusz was Dame Cicely Saunders’ husband, and many of his paintings are displayed around St Christopher''s Hospice. This book, with colour plates of his paintings and articles about his work, includes a preface by Dame Cicely Saunders. Reith M, Payne M Social work in end-of-life and palliative care Policy Press 2009 £18.99
Malcolm Payne is an adviser on policy and development at St Christopher’s Hospice and Margaret Reith is senior social worker at Princess Alice Hospice in Esher, Surrey. As well as providing a perspective on the development of palliative care in the UK, the book explores key issues in social work as it relates to end of life care – awareness and uncertainly in death and dying, truth, hope and communication at the end of life, psychological assessment, appropriate social work interventions, grief and bereavement, multiprofessional teamwork, ethical issues and group and macro interventions. The book also contains interesting figures, tables and a list of relevant websites. Saunders C Clark D This book includes a selection of Cicely Saunders'' most important writings throughout a period of over forty years. Full articles, chapters, editorials, reviews, and commentaries include important clinical themes relating to the care of dying people such as pain and symptom management, issues of communication and truth telling, and the needs of particular patient groups, such as those with cancer and other diseases. The book includes pieces that reflect on the wider development of the palliative care field and on policy and organisational issues. Some of the papers take up the theme of spiritual care at the end of life, as well as the question of euthanasia, raising in turn issues of a wider theological and philosophical nature. The articles are written for a multi-disciplinary audience and will be of enormous interest to many professionals now working in palliative care. This interesting article provides a succinct account of the writings of social workers on the subject of terminal care, mainly prior to the start of the modern hospice movement. It thus emphasises the contribution of this discipline to the modern hospice movement. Cicely Saunders worked as a nurse, a social worker and a doctor. |