The Power of Nursing Through Storytelling

Marie Cooper, Kerene Payne, Eva Paoletti, Sachin Dwivedi and Andrew Adeck 

There is a kind of care that no textbook fully captures. It lives in quiet hospital rooms, in whispered confessions, in hands held through the longest nights.

On International Nurses Day, the Global Palliative Nursing Network (GPNN) brought four nurses to the stage at the Nursing Now Challenge Global Event, and each one told a story that stayed in the room long after they finished speaking.

Storytellers, Story Gatherers, Story Keepers

As a nurse, Kerene is the backbone of South Africa’s community PC team. She spoke first, and she gave the room a framework that felt like something they had always known but never quite named. Palliative nurses, she said, move through three roles and each one matters.

A photograph of Kerene Payne. Kerene has her blonde hair tied back and is smiling for a professional photo - looking directly into the camera and wearing a patterned blouse.

As storytellers, we sit with patients and draw out the words they are afraid to say, their dreams, their fears, their regrets, and we carry those words forward to advocate for them when they can no longer advocate for themselves. As story gatherers, we go deeper still, learning not just the patient’s condition but their whole life: the adventures, the loves, the losses, the memories they want to leave behind. And as story keepers, we become the guardians of the things said only once, in a low voice, in a room where the door is closed. The last wishes. The long-held guilt. The quiet plea for forgiveness. Patients share these things because they know, in the space a nurse creates, they will never be judged. They will only ever be met with love.

Eva has long dark hair covering her shoulders and is wearing a white top and yellow cardigan. Eva is stting on a sofa, smiling widely as she looks into the camera.

The Secret Everyone Already Knew

Eva travelled around the world to write her book, joined us from the UK, and she has come to recognise a particular kind of silence, the silence of a family that has, without words, agreed to pretend. The patient does not mention dying. The family does not acknowledge the truth. Everyone believes they are protecting each other, and everyone grieves quietly and alone.

She remembered the afternoon a man in his fifties, lying in a hospice bed with his wife beside him, simply looked up and asked: “Am I dying?” Eva was trained for this question. But before she could speak, his wife answered. Calmly. Honestly. With so much love, the room filled. Yes, she said. And I will be right here until the end. He wept. He thanked her. And the suffering that had lived between them, unspoken for so long, finally became something they could carry together. Eva left that room knowing she had witnessed something rare and healing: the truth, spoken tenderly, arriving just in time.

When Silence Becomes the Care

Andrew, a nurse working in conflict-affected South Sudan for more than 20 years, told a story where the most important thing he did was nothing at all. He was caring for a young woman with stage IV HIV/AIDS whose family’s relentless hope had left her no room to be afraid. She had fears that she could not speak. Grief with nowhere to go.

Andrew looks directly into the camera as he wears a white top. He has a relaxed expression on his face.

So Andrew sat beside her, took her hand, and did not fill the silence. He simply stayed. After a long while, she began to talk, really talk about the sadness and fear she had carried alone. When she finished, she looked at him and said quietly, “I feel lighter now.” Andrew carried those words home. They remind him, they remind all of us, that presence is its own form of medicine, and sometimes the most healing thing we can offer is simply to stay.

Sachin is posing for a professional photo. He wears a smart suit and tie as he looks directly into the camera with a calm smile.

Please Take Me Home

Sachin, a palliative care nurse educator from India, spoke of a woman of forty-two battling Acute Myeloid Leukaemia, who arrived for a bone marrow transplant after a year of fighting. On the day they met, she gazed toward the River Ganga and said softly, “If I die, please put my ashes in Maa Ganga.” It was said with faith, not despair. The day before her transplant, she whispered, “I will die soon. Please take me home.” He had no answer, only the weight of her words.

The transplant offered hope briefly, then sepsis took it away. Her family chose to honour her wish. A twenty-hour ambulance journey brought her home. When she arrived, fear gave way to relief, peace, recognition. She told her husband, “Today I will die.” Prayers, Family gathered. And she left this world gently, at home, her soul beside the sacred river she had always believed in.

When the nurses finished speaking, the room held its breath. Sana Gul, a postgraduate Fellow at the University of Birmingham, UK, reflected that listening itself had been the greatest lesson, a powerful tool for understanding how grief is carried and shared. Flora Dangwa, a PhD Fellow at Cicely Saunders Institute, called it simply “very, very powerful.”

About the GPNN

The GPNN unites nurses worldwide to strengthen compassionate palliative care through collaboration and shared experience. It empowers champions to lead, support peers, and improve care for patients and families everywhere.

To join this growing community, visit https://www.stchristophers.org.uk/gpnn/ 

Visually impaired carers are the latest cohort to receive palliative care training in Bangladesh

The Institute of Palliative Care Bangladesh (IPC-B), under the Palliative Care Society of Bangladesh (PCSB), successfully conducted the first 20-hour training program for visually impaired carers from 7–9 November 2025.

A total of 18 participants, including 14 visually impaired trainees, completed the 20-hour training. The course used specially adapted Braille training materials to ensure accessibility.

A photo of 3 individuals sitting at a table, using braille to read books.

The training covered key aspects of palliative care including communication, symptom support, emotional care and community participation. Pre- and post-training assessments showed clear improvement in participants’ knowledge and confidence, and the programme received an overall satisfaction score of 8.8/10, with all participants expressing interest in advanced training.

The programme concluded with a certificate ceremony and a cultural event jointly organized by trainees and students of the host school.

This pilot initiative demonstrates the strong potential of visually impaired individuals to contribute meaningfully to inclusive, community-based palliative care in Bangladesh.

The Palliative Nurses Society of Kenya (PANUSK)

Sylvester Wambua (Kenya, Africa)


It’s possibly the greatest endorsement of the Palliative Nurses Society of Kenya (PANUSK) that it will be hosting a meeting shortly to discuss whether to extend membership to nurses working in other specialisms.

In the three years since Sylvester Wambua and fellow GPNN member Stella Mwari Rithara and Gladys Mukosi started PANUSK, it has grown to include 150 members from across Kenya and has become a national movement shaping the future of the country’s palliative care.


Sylvester says the aim was to establish a network to connect palliative nurses and to advance the specialism. Workshops, webinars and professional education are just some of the ways in which the society is strengthening nurses’ capacity while also advocating for the integration of palliative care into mainstream healthcare.

“It is nurses who are driving palliative care in Kenya. We are specially trained in handling sensitive issues and it is the compassion of nurses that helps us champion the patient when they need us most.” Sylvester says he has noticed a huge difference in the palliative care landscape in Kenya in the nine years since he started working in the field. But gaps in service remain in parts of Kenya and Sylvester hopes that the growth of PANUSK will help plug those gaps.

“With the help of mentorship programmes, if we can make sure that at least one person in every hospital we can transform patient care across the system.”

Certainly, word is spreading fast in Kenya and Sylvester and his colleagues running PANUSK now face a major decision; whether to respond to demand from nurses working in other specialisms to join the society. A decision will be taken at a meeting next month. Sylvester is keen to credit his membership of GPNN for some of PANUSK’s success.

“Everyone in GPNN has one common goal and through the network we are able to get expertise from different parts of the world, to see the innovations that work in some places and not in others. So, then we’re able to think global and apply local, taking learnings from our international peers and adapting them to the Kenyan context. In practice, Silvester has taken learnings from GPNN colleagues in Cameroon, Bangladesh, Lebanon and Abu Dhabi.

“That’s why we’re trying to mobilise more people from PANUSK to join GPNN so they can open their eyes to see what it’s like practising outside Kenya as well.”


With a strong start to its short life, Silvester has ambitious plans for the society in the next decade.“Capacity building is one of the main goals – to ensure we have a workforce that can handle the burden of people with palliative care needs and to see that integrated in the community. “I’d also like to see some of our nurses in policy making positions as well as teaching and mentoring so they can help the next nurses coming through to be leaders.”

The list of aims and objectives doesn’t stop there. Sylvester would like to see a further extension of compassionate communities supported by high school, college and university students, an established home care service and a functioning tele-medicine service too.

Challenges and barriers do remain though, Sylvester acknowledges. The sheer size of Kenya makes in-person meetings difficult for those nurses working in some outlying areas. There remains, he adds, a less than universal acceptance of the importance of palliative care and limited opportunities for nurses to return to education.
“Inch by inch we are getting there,” Sylvester says pragmatically. “We’ve now had a palliative care policy in Kenya for five years and we as nurses have revised the national guidelines.”

With a clear vision, growing membership, and a deep commitment to compassionate care, PANUSK is helping shape a future where palliative care is accessible, integrated and patient-centred across Kenya.

Sylvester and his colleagues are always interested in collaboration and you can contact them via panusk@gmail.com.

Canaries in the health coal mine – moral injury in nursing


At our January 2026 GPNN Spotlight Event we explored moral injury in nursing. It brought us back to our 2025 session on Trauma-Informed Leadership, where Anna Mahne helped us understand how leadership can protect the wellbeing of nurses.
Moral injury and burnout are not failures – they are signals. When we learn to listen to the canary’s song and lead with trauma-informed awareness, we create safer, more compassionate cultures for nurses and patients alike.

Nurses are the modern-day canaries of health care and our voices have fallen quiet as we quit from moral injury, burnout and compassion fatigue. So why are our voices not asked for, listened to or heard? This is wake up call to all who know the power of palliative care to hold space and honour the stories of our dying.

Trauma informed leadership asks what is a leaders work in the contemporary context of palliative care?

The answer is to know their own inner canary and then to sense the song of other canaries. To lead ourselves to safety when working in deeply dysregulated and often toxic work cultures IS the work of attuned leadership. It senses the underbelly of what is driving the quiet quitting and has the courage to attend to the relational fabric with a radical awareness of sensing the nervous dysregulation we all hold when under stress. This is a collective urgency for deep team work and it starts with the quiet awareness of our own nervous systems.

TIL understands that there is an emotional world of experience rumbling beneath the surface. It understands that when emotional responses are triggered in the work place that each responds according to the extent of their emotional scars, traumas and emotional strengths.

Relationship is everything so self-care through knowing what you need, is a professional priority, not an optional extra. 

Healing teams happens in relationship but first we must feel safe to connect and that is where Polyvagal theory offers clarity and hope. It is the art of anchoring the Self in safety by learning how we become hijacked by our autonomic nervous systems which both creates and witnesses our lived experiences.

When we sense we are outside our window of tolerance to our environment, we move into the fight-flight sympathetic drive. It primes us to seek out threat and hyper focus on this. Too long in a chronic state of hyper vigilance leads to disconnect where the external environment and its actors need to be dulled and contained for psychological safety. This is where nurses of all grades have operated for too long and why our voices are muted.

Yet we can move out of this disconnect and find safety in ourselves and our teams when we are attuned to others and our own nervous systems regulation.

We all hold trauma in us and we work in a culture that is preformative, transactional, and where vulnerability is not safe. We have numbed ourselves to the fear we hold in us and our teams. So how do we give space to feelings and create places of emotional safety where the relational fabric is authentic and nurturing? If leadership is paralysed through its own trauma, it cannot guide. We must reimagine through a trauma informed lens, not a critical accountability mindset.

 ‘Be Curious …What happened to us’ not ‘What’s wrong with us?’ 

This is the question we should be asking ourselves and helping others to do so also . We work in living systems that adopt survival strategies, returning to normal once the threat has passed but when under chronic stress, we lose resilience and move into overwhelm. So with compassion and curiosity we should be asking three simple questions before we react: I wonder why they are reacting that way: I wonder why they are feeling that way: and I wonder why I am feeling this way?

Victor Frankl gave us wisdom with
‘between the stimulus and the response there is a space. In that space is our power to choose our response. In that response lies our growth and our freedom’

So my ask of leadership

Dare you be vulnerable first in your team? Can you bring your whole Self to work? What is the quality of your presence ? Do you practice self compassion? Are you known, asked and seen? Where do you feel stuck? Can you recognise your own fear and contraction and who deeply listens? Finally, where does unaddressed trauma sit in your team?

So in caring for our canaries we must listen for their song. Creating space to choose your reactions, and meeting fear with presence and knowing is about honouring and accept our humanity. TIL make self care a priority because trauma is in us all and healing is possible when we are able to be connect in safety to ourselves and others. Trust your nervous system to be your guide and be curious and compassionate when listening for the canary song before it fades too faintly.

Anna Mahne
Registered Nurse and Psychotherapy student
GPPN Champion UK

Find out more about the GPNN

What motivated me to set up a charity

Catherine Arbour, Kenya 

Catherine Adhiambo Abuor, GPNN Champion

What motivated me to start Jacan Health promotions community Based organization in Ragwe sub- county in Homay County, Kenya.

A young lady, a mother of two children privileged to join nursing training in Tanzania in 1989. Just like any other person would be excited to be in a college especially going to another country. I started my training well and completed 4 years at Shirati School of nursing Tanzania. A young nurse happy to join her family back home, and ready to start working and care for her family. Little did I know that I was coming to get my son suffering from serious illness I found my son having general body weakness, not ready to play with other children, loss of appetite, black lower lip and palpitation. We took him to Lady Margaret Hospital in Homa bay, seen by late Dr Ochola who later referred us to Kenyatta National Hospital for further management. It was a blow to us as a family, because my goal and expectation was to live well with my children since I was in college for four years. At KNH the child was diagnosed with acquired rheumatic heart disease through Dr Tom Omulo who took his time for us that we would get better treatment. We were given date for follow up and we attended cardiac clinic for children several times.

Every time we attended the clinic my son had to be injected with procaine penicillin, I could see my son in pain, would not walk well, walking slowly and dragging his legs while walking. I saw this every month when we visited the clinic. No body explained to me why my son was being injected and getting pain after every injection, and even the side effect of the drug. Doctors and nurses did not tell me how long my son was going to get injection. I was in darkness, I didn’t know what to do to my son. I could see him tearing a lot because of pain. In 1997 open heart surgery was performed and it was successful. He was discharged went home, went back to school for one term. When school was closed he went to be reviewed in KNH, the cardiac clinic and the doctor said that he going to be admitted for some investigations. Little did I know that my son will not come out of the ward.

While in the ward he developed complications of severe headache, severe vomiting, chest pain, restlessness and protruding of the eyes because of pain. He told me mom pain, mom pain. My son was in a lot of pain, I could see him looking at me thinking I would give him something to relive pain. He looked at me helplessly and there was nothing I could do, nobody to turn to. I was only to massage gently the shoulders, back and head. All these I reported to nurses but they did nothing. My son saw the doctor who did the surgery to him hoping he could come to give pain medication, or to review his pain but all was in vein. Unfortunately, the doctor went without coming to see him.

I saw my son dying in severe pain turning left and right because of pain. This was a very bad experience I saw at the death bed of my son. Nobody prepared me that death is eminent. Immediately my son died the doctor was there to certify the body, but the time I needed them the doctor was not available. The time I needed them most they were not there for me. It was a dark moment; a day I will never compare with any day in my life.

This is the reason why this idea was conceived of taking back to the community. I would not like to see any child or adult dying in pain. I would like to give information to the patients, caregivers and family member so that they should not go through the experience I had when taking care of my child. Just only a touch is very important to patient that gives them comfort and smile that child matters, that adult patient matters in whatever the condition they have. They matter until the last day of their lives. This will improve the quality of life of children and adult patients suffering from life threatening illnesses. Raise awareness to community that pain can be treated and no one should die in pain.

Standing on the Strength of Community

Anu Savio, GPNN Champion

Anu Savio Thelly (UAE  & India) 

This year has been a powerful reminder that when we stand rooted in community, possibilities unfold in ways we never imagine. I want to share two opportunities that recently came my way—both unexpected, both humbling, and both deeply connected to the people who have shaped my journey.

Earlier this year, while participating in the Pathfinder Program led by Heather Marie and Jess, I was tasked with completing a project as part of our learning. After reflecting on my strengths and intentions, I decided to commit myself to taking up as many online teaching opportunities as possible, with the goal of reviewing and evaluating the experience by the end of the year. I wanted to stretch myself, give back, and learn what meaningful teaching looks like across different global contexts.

Only a few weeks after my initial conversation with Marie about this idea, an invitation arrived—an opportunity to lead an online ECHO session for an introductory course in paediatric palliative care for nurses across low- and lower-middle-income countries. This is the first peds palliative care course exclusively for nurses designed and delivered by nurses. I still remember the moment clearly: I metaphorically fell head on knees and said “yes.” This came through Dr. Spandana from Two Worlds Cancer Collaboration, and with Dr. Tara Labaar involved, I felt reassured. With the strength of our incredible Global Palliative Nursing Network (GPNN) behind me, I knew I would not be stepping into this alone.

Today, we have 120 nurses in our first cohort. And the joy is even greater because our GPNN family—Prof Julia, Janane, Lailatul, Erin, Tara—are all part of the faculty team. Leading this important course, alongside such extraordinary and generous colleagues has been an honour. Their presence has transformed this course into a community of shared learning, encouragement, and hope for the future of children’s palliative care.

Both of these experiences remind me that doors open when we are supported, when we trust ourselves, and when we walk forward with gratitude. I am deeply thankful to everyone who believed in me, guided me, and stood with me. My hope is that this journey encourages others to step boldly into the opportunities that come their way—because community makes everything possible.

Brazil: A country in which palliative care certainly has a future  

The Premier Education and Culture Institute in Brazil and St Christopher’s Hospice in the UK have a long-term relationship, focused on a shared aspiration to build capacity and capability in health professionals and others through the offer of education and training in palliative and end of life care. Over the years, Premier has led the rollout of QELCA® (Quality End of Life Care for All) to over 51 institutions from 26 cities, and 122 palliative care professionals as facilitators. Through the Train the Trainer approach, at least 642 professionals in Brazil have benefited from palliative care educational interventions.

More recently, it has become a Beacon of CARE, also focused on delivering high quality education and training but with a broader portfolio of learning curricula and resources. The Centre for Action and Response to End-of-life (CARE) is part of St Christopher’s. Together, the two organisations are identifying opportunities for new courses in palliative care for people working in Brazil, then contextualising and developing courses developed by St Christopher’s to meet local opportunities and challenges. Premier, a non-profit education and training institute focused on training professionals in the public health system, is led by an extraordinary doctor and visionary Samir, who has drawn together family and others to pursue his vision for a more equal and fair society in which people can live, die and grieve well. 

This is no insignificant challenge. Brazil has a population of over 200m people, many of whom are subject to significant structural inequalities, including those related to health and end of life.  

Taking part of an Encounter experience in Sao Paulo

I was honoured to join Beacon colleague Manuela Salman and others from Premier at a recent “encounter” event in July, open to anyone in Brazil committed to advancing palliative care in this country. The four-day programme brought together around 380 individuals involved in adult and paediatric care, community and inpatient facilities, urban and rural services. The audience comprised a rich mix of students, senior clinicians, policy makers and volunteers. Together they shared local, national and global experiences of delivering palliative care, made connections and new relationships and explored opportunities for advancing palliative and end of life care in their country.

Specifically, the participants renewed their commitment to an advocacy social movement called Frente PaliATIVISTAS, which played a key role in the approval of Brazil’s National Palliative Care Policy—grounded in primary health care. The movement is now focused on securing funding for the policy, aiming to ensure that more people have access to high-quality palliative care, regardless of the inequalities they face. The four days included celebratory events, formal presentations, music, and a number of different exhibitions. Musicians, young children from the local favella, a world-renowned theologian and generous hosts brought perspectives beyond palliative care, contextualising the thinking of the encounter in wider issues of climate change, art, samba, jazz and human connectivity. 

Reflections on the encounter 

It is tempting to say more in this article about the detail the encounter. It provoked much thought I me. instead, I am interested to reflect on what UK palliative care services can learn from colleagues in Brazil that became evident in the encounter.

My desire to do this reflects a growing concern about palliative care in the UK. A long time actor in the field, I see a sector that appears to be shrinking – in terms of provision, voice and aspiration, despite significant growth and impact over recent decades.  Fears about funding are significant; anxiety in relation to a possible change in the law around assisted dying  are paralysing; and lack of investment in ongoing education and training denies organisations and their workforce to prepare for changing needs and opportunities. We, in the UK, could learn from Brazil, and specifically those who took part in “the encounter’. They struggle with many of the same challenges, but there is a strong sense of momentum. What I wonder, are they doing, that we could emulate in the UK to sustain our ambitions, energy and outputs in the future.  

Invest in relationships 

At the heart of the ambition, confidence and energy of the encounter was the belief in the value of everyone present and their different contributions to a new outlook for Brazil. The encounter began with an evening celebrating past achievements on the part of QELCA® centres, then some aspirational talks from teachers from the local favella and others who spoke of a different future for people living in Brazil, particularly those whose lives had been shaped by inequity. The connections and interest in others were perpetuating features of the encounter, culminating in a celebration at the end of the encounter in a local restaurant to which all attendees were invited. In the course of each day, people gathered at breaks, the start and end of the day to renew and strengthen relationships that had personal as well as professional value and were of an enduring nature. 

Be political

Despite the convivial nature of the event there was a strong and uncompromising call for renewed commitment on the part of the Government of Brazil to its promise of better palliative care for its population. The detail of the policy exists, but there is little investment in its roll out in practice. Whilst the flavour of the encounter was one of love and concern for each other, there was a resounding and unremitting demand for action on the part of politicians and others in positions of responsibility. Politicians from the Ministry of Health were invited and participated in the event alongside clinicians, generating a strong and shared sense of accountability. 

Look beyond professional services to redress inequalities 

One of the most notable elements of the encounter was the partnership evident between community led initiatives, particularly compassionate communities and hospital services, all working to enable people to live and die better, wherever they lived. Many of the professionals volunteering in community initiatives worked also in private hospitals. There was no sense of any hierarchy of value or expertise, instead a mutual appreciation of the different elements of care provided across a broad economy. Community led initiatives extended beyond informal care, incorporating elements of community life such as samba bands for children and young people. Stories of success included crowd funding for individuals in distress alongside organised responses. Professionals were keen to be seen to support community led initiatives and proud when they did so. 

Act generously

The founders of Premier Institute do not appear to require any acknowledgement of their role as leaders of long term and successful change. Instead, they work hard to acknowledge the contribution of others, drawing in new and different actors to reflect the breadth of agenda they have set. The programme drew on a wide range of contributors, recognised for past efforts and future offers. Their spirit of generosity was inclusive, clearly enjoying difference across individuals and groups. 

Address the future with courage 

Finally, the courage with which the encounter organisers attended to difficult issues, including that which might undermine their reputation was notable. Issues such as the vital role of palliative care in assisted dying and lack of professional advancement opportunities for some disenfranchised community groups were fully addressed, supported by the audience who listened with curiosity, and showed their commitment to a different world through active involvement in panel discussions and similar.

Concluding thoughts 

It would be easy to consider Brazil sufficiently different to the UK that there is little opportunity to find parallels that offer new and reciprocal solutions beyond that country. I believe that is that is far from the truth and key speakers from other parts of the world confirmed this to be the case also.

UK based speakers such as Allan Kellehear highlighted the value of the public health approach adopted by Brazil and the progress of its compassionate communities.  Mark Stoltenberg from the USA noted the huge advances towards greater universal access despite the inequalities. My own reflections acknowledged the highly relational approach to improving care in Brazil – a far cry from the often transactional approach to care that is increasingly common within the UK.

Moving forward, St Christopher’s is keen to perpetuate the partnership and learn from Premier Institute and its local partners. Premier Institute similarly acknowledges opportunities to build leaders and rehabilitation services via St Christopher’s CARE. We can see a much brighter future through our work together. Long may it continue 

Heather Richardson 

Sachin Dwivedi’s story

My name is Sachin Dwivedi, a registered nurse and clinical instructor at the College of Nursing, AIIMS Rishikesh, India. My journey into palliative care began six years ago—not in a hospital, but in the home of a colleague whose wife was newly diagnosed with a serious illness. She was in denial, overwhelmed, and had lost hope. I visited her twice within a month, simply offering time and presence. Two months later, she chose to begin treatment. Today, after two years of chemotherapy and radiation, she is healthy and thriving. That experience awakened something profound in me—the power of compassion and companionship in the face of suffering.

I am so excited about the launch of our WhatsApp group and want to share with you what impact it is having already!

A Global Circle of Care: How GPNN’s WhatsApp Communities Are Changing Palliative Nursing

The Global Palliative Nursing Network (GPNN) has launched a series of WhatsApp communities designed specifically for palliative care nurses around the world. These aren’t just messaging groups. They are living ecosystems—places of belonging, spaces of safety, and sources of professional and emotional strength.

Today, nearly 200 nurses from across continents are connected through GPNN’s digital communities, sharing knowledge, seeking advice, and standing by each other through the challenges and triumphs of palliative care.

Reuniting Across Borders

In one example, Janane from Lebanon and Xuan from Taiwan—both experienced palliative care nurses—reconnected after 12 years through the GPNN network. They discovered they were both attending EAPC2025 and met in person, reaffirming the global bonds forged through shared commitment and practice.

Support in Real Time

These groups meet nurses where they are—whether in a remote clinic or a large urban hospital. They offer real-time support from colleagues who understand the realities of end-of-life care.

“We are currently caring for a 94-year-old patient with dementia receiving long-term enteral feeding and frequent respiratory infections. I posted a message at 5:00 PM. By 5:15, I had thoughtful, supportive replies from three nurses. I was moved to tears—not by the situation, but by the solidarity.”
— Niraj Tiwari, Nurse, India

Shared Knowledge, Practical Help

In the Educational & Research Resources Group, nurses share everything from clinical guidelines to training modules. Practical questions find practical answers—quickly.

“Does anyone have guidance on working with MND in palliative care? Especially training family caregivers around breathlessness or choking?”
— Kerene, Nurse, South Africa

Pediatric Palliative Care: Collective Experience

One of the fastest-growing groups has been focused on pediatric palliative care. Within days of launching, more than 120 nurses from places like Kenya and Kerala joined. They now exchange resources, advice, and personal stories to navigate the unique complexities of pediatric cases.

“I struggle to explain pediatric palliative care myths and truths to my team. I want to empower my colleagues here in the Philippines.”
— Coy, Nurse, Philippines

A standout moment: Kenyan nurses shared their national Paediatric Palliative Care Guidebook, offering a valuable resource to colleagues around the world.

A Trusted Space for Honest Questions

Another space—Ask Your Questions—has become a trusted outlet for nurses to raise difficult issues, clinical or emotional.

“I asked how to care for a transgender patient in palliative care. I was afraid of saying the wrong thing. The responses I received were gentle, respectful, and informative.”
— Nurse, Philippines


These WhatsApp groups may seem simple, but they represent something powerful: nurses supporting nurses, across language, geography, and experience. They offer not just knowledge, but connection—a global circle of care that makes every shift a little lighter and every challenge a little more manageable.

As GPNN grows, so does the possibility of what palliative nurses can do—together.

Empowering Communities: A Glimpse into Our Nursing Outreach

For over 18 years, we’ve partnered with non-governmental and faith-based organizations to implement crucial health and nutrition projects. Currently, we focus on serving vulnerable populations such as children under five, pregnant and lactating mothers, and those facing serious illnesses like TB/HIV.

A group of young Sudanese children

Our community nursing service team extends compassionate care beyond clinic walls, reaching into refugee camps and local communities. We provide essential health services, from managing non-communicable diseases to combating communicable diseases like malaria and cholera. Integrated within primary health care frameworks, our multidisciplinary approach involves doctors, nurses, social workers, and community health workers, ensuring comprehensive support for families in need.

Advocacy is at the core of our mission. We champion palliative care, advocating for cancer patients often forgotten within communities. Every individual deserves dignity and access to essential services, and we strive to make this a reality through our work.

Recently, at a refugee camp, we witnessed firsthand the resilience of children and women who have endured profound hardships. As one child expressed, “We experienced bad things. People died in front of us, and we were scared we might die too.” Our interactions bring not just medical care but also hope and comfort to those who have faced unimaginable traumas. By listening and engaging with these communities, we aim to heal deep wounds and restore smiles to the faces of children and mothers alike.

Through empathy, kindness, and a commitment to individualized care, we continue to make a meaningful impact in Aweil East County. Our efforts are guided by the belief that together, we can empower communities to overcome health challenges and build a brighter future.

By Andrew Adeck Omuse GPNN Champion,Palliative care South Sudan

CARE’s Global Palliative Nursing Network

Welcome

Global Palliative Nursing Network

I’m delighted to introduce you to the Global Palliative Nursing Network (GPNN), launched in 2023 through the Centre for Awareness and Response to End of Life (CARE) at St Christopher’s. The network is hosted by myself and my colleague Professor Heather Richardson MBE.

This network was created in response to nurses across the world who told us how much they value connecting with peers, sharing experiences, and learning from others working in different contexts. These exchanges show both the similarities and differences in practice across regions; they deepen insight and offer access to contemporary nursing perspectives.

Our Focus

Our primary focus is professional development. We aim to strengthen the voice of the professional nurse and create a space where ideas, expertise, and innovations can be shared. We also offer access to expert and inspiring speakers who address emerging and relevant topics in palliative care nursing. All of our past Spotlight events are available to view once you register here and cover topics from the ‘Implementation of a National Competency framework in Palliative Care’ to exploring the power of storytelling to articulate our professional offer.

Our network has an amazing Community of Champions who provide advice and guidance on the direction of the network and contribute to the new Global Nursing Fellowship Programme. This will commence in August 2025.

Who is this network for?

We welcome all nurses involved in providing end of life and palliative care – whether to children, adults, or both, and in any care setting. If you’re curious about how global connections can support your practice and growth, we invite you to join and see how this network could be of value.

Why join?

We want to connect nurses with nurses. By sharing knowledge, insights, and support, we can collectively build a confident, responsive, and empowered profession – one that clearly understands its value and is ready to lead the delivery of care that our communities expect and deserve.

If you’re a nurse, we invite you to come on this journey with us – as we grow the network and explore what it can offer to you, your colleagues, and the wider profession.

We look forward to welcoming you.

Marie

Marie Cooper

Marie Cooper
Senior Nurse Advisor

Celebrating Palliative Care Nursing
Professional Learning