Future planning: Advance Care Planning Reconsidered

St Christopher's CARE

Event overview

  • 25 Jan, 2024
  • One day conference
  • £99 Early Bird until 22 Dec (Full price £150)
  • All prices include VAT
  • St Christopher's CARE

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Useful information

Illustration of a checklist under a spotlight

Advance Care Planning is an approach helping people to plan their healthcare and support at the end of life based on the idea that it may prevent suffering and over- treatment.

But is it time to pay it more attention?

What do we know about it in practice, does it need to change and who should be involved?

Join us at this full day interactive conference to reconsider Advance Care Planning.

Our speakers and activities representing a range of viewpoints and experiences will help you explore the concepts, practices and realities of Advance Care Planning to date. You’ll also hear lived experience accounts and about new ideas and approaches, and take part in workshops focused on change

This event will be of interest to:

  • Clinicians working in primary and secondary care
  • Hospice and hospital-based clinicians
  • Care home staff
  • Policy makers
  • Commissioners

This conference will allow us to consider how ACP has been implemented, as well as the current outcomes and impact it has had so far. By reflecting on current practices, we will also be able to review where we may need to look more closely at its practice and the impact on equitable treatment.

We have an exciting inter-disciplinary line up to really put a spotlight on this area in different ways. Speakers will include people from the London Ambulance Service, Community Engagement workers, Hospice Nurses, social scientists including researchers with Learning Disabilities, and people who will advocate for change sharing their lived experience.

We will engage with some of the debates or considerations around the implementation of ACP and who may engage in it, and what happens when they do.

The conference aims to provide further understanding of some of the underlying assumptions around ACP and which concepts they are rooted in (improving experience through choice, personalised care), and also contextualise ACP by reviewing how people might understand or resist it.

Importantly, we will consider whether planning for the future is a shared goal and if so what roles other stakeholders in wider society have. We’ll ask how the health system might improve its response and where ACP might sit in a continuum of actions, understanding, timing, and more so that all stakeholders benefit. Our intention is to create an event in which there is wide participation on the part of all attending to negotiate and arrive at some key recommendations to amend and improve the current process.

TimeActivitySpeaker
Morning chair: Heather Richardson 
10:00Welcome and introduction to dayHeather Richardson, Director of Academic Learning and Action, St Christopher’s CARE
10:10Setting the scene: the value of future planningRekha Vijayshankar, Research Nurse, Marie Curie Hospice  
Jodie Grace, Paramedic, Macmillan End of Life Care Team Support, London Ambulance Service NHS Trust  
10:40  Choice and Advance Care Planning: ideals and realitiesErica Borgstrom, Professor of Medical Anthropology, Open University  
11.25Break: tea, coffee and light refreshments 
11:40The current landscape for advance care planning and the broader activities of future planningJonathan Koffman, Professor of Palliative Care and Associate Director of the Wolfson Palliative Care, Research Centre Hull York Medical School  
12.10Stories that help us learn about the experience of inequalities and how they affect advance care planningDr Melissa Fielding, Community Action Researcher, St Christopher’s Hospice  
12.45Lunch – provided (more info coming soon) 
Afternoon chair: Mary Hodgson
13.45  Alternative approaches to future planning; working in new ways with new actors  Irene Tuffrey-Wijne (and team), Professor of Intellectual Disability and Palliative Care, Kingston University, London  
Malcolm Gill, Croydon Death Literacy Network Coordinator, St Christopher’s Hospice  
14.45New goals that could shape a different way forward  Advocates of lived experience
15:00 Workshops focused on the goals  Groupwork  
15.45Break: tea, coffee and light refreshments 
16:00  Making a pitch for new approaches to future planning TBC
16:30Final reflections and close 
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Heather Richardson

Director of Education, Research and End of Life Policy at St Christopher’s Hospice, Honorary Professor in the International Observatory on End of Life Care at Lancaster University and Senior Research Fellow, Harris Manchester College, University of Oxford. Heather Richardson currently works as the Director of Education, Research and End of Life Policy at St Christopher’s Hospice. She previously worked as Joint Chief Executive, then CEO of St Christopher’s over a period of eight years. In the past she has held the role of National Clinical Lead for Hospice UK, and worked as Clinical Director, then Strategy Advisor to St. Joseph’s…
Read full profile Heather Richardson
Mary Hodgson

Mary Hodgson

Head of Community Action & Learning/CARE Co-Lead, St Christopher’s Hospice. Mary is an experienced community facilitator and researcher, and is interested in how people understand societal challenges and want to create change.  Mary has a PhD on how people perceive inequality and why they seek to change it, and has worked in charities, social innovation and change leadership programmes as well as on international research and action initiatives. She currently leads a team of people creating participation opportunities, new initiatives and tackling societal challenges with community members and professionals in London.
Read full profile Mary Hodgson
Young white woman in paramedic uniform

Jodie Grace

Since 2001 Jodie has been a paramedic for the London Ambulance Service, firstly working on an ambulance in East London before transferring to the Southeast in 2015. Jodie now works as a solo responder on the first response units, attending the highest category of calls, to care for patients deemed to be the most time critical.  In addition, she became an end-of-life care coordinator which presented her with the opportunity to join the LAS Macmillan end-of-life care team, on secondment. Jodie thrives on the experiences, challenges and variety that come with working both on the front line in a patient…
Read full profile Jodie Grace
Malcolm Gill

Malcolm Gill

Malcolm works in the Community Action Team as the Project Coordinator on the Croydon Death Literary project where he develops significant partnerships with a wide range of community groups and organisations, whose members often face multiple health inequalities, helping them to improve their skills and confidence to have important conversations about death, dying and loss.
Read full profile Malcolm Gill
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Erica Borgstrom

Prof Erica Borgstrom is a Professor of Medical Anthropology at The Open University (OU), where she specialises in death studies and leads Open Thanatology. She is a Senior Fellow of the Higher Education Academy and a Fellow of the Royal Anthropological Institute. Her research predominately examines, often using ethnographic methods, how palliative and end of life care are practiced and structured. As such, her work juxtaposes policy, practice, and people’s everyday experiences. She is an internationally recognised leader in this field and contributes to a range of research and teaching in this area. Based on the ethnographic findings of her research,…
Read full profile Erica Borgstrom
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Jonathan Koffman

Jonathan Koffman is a Professor of Palliative Care at the Wolfson Centre for Palliative Care Research at Hull York Medical School. He previously worked at the Cicely Saunders Institute at King’s College London. Jonathan has undertaken palliative care research principally on marginalised populations and communities. He has also undertaken research on clinical uncertainty and it is addressed in end of life care and advance care planning among those living cancer and multiple sclerosis, including approaches to incorporate family members into this important process.
Read full profile Jonathan Koffman

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