Improving Palliative Care for People with Advancing Heart Failure

Attend our one day conference in-person or virtually

St Christopher's CARE

Event overview

  • 19 Jun, 2024
  • One day conference
  • 10am to 4pm
  • £160 plus VAT (in person)
    £145 plus VAT (virtual)
  • St Christopher's CARE or Virtual

Book online

Useful information

Join us in-person or virtually for a one day conference ‘Improving Palliative Care for People with Advancing Heart Failure: Opportunities for integration and collaboration’ on 19 June 2024.

Nearly a million people in the UK have heart failure.

But how many people with heart failure receive the essential palliative care needed for their diagnosis?

Following the success of the Heart Failure Community of Practice, this conference brings together a multitude of expertise and disciplines to improve palliative care for people with advancing heart failure.

Heart Failure Conference 2024

In January 2024, Isobel Jackson, palliative heart failure nurse specialist, created the Heart Failure Community of Practice to support clinical practitioners gain essential skills and experience to support people with heart failure. To date, there are over 200 active members.

Following the success of the Heart Failure CoP, we will focus heavily on the opportunities and service integration, and along with collaborating with multi-disciplinary teams to improve palliative care for people with advancing heart failure.

By attending this conference, you will:

  • hear from leading experts in heart failure and palliative care practices
  • gain opportunities to increase your role and contribution to heart failure services (for nurses)
  • understand what is most important to people living with a diagnosis of advancing heart failure, including families and carers
  • be introduced to a model of collaboration and integration of services and professional effort, essential to enabling people with advancing heart failure to die well
  • be aware of opportunities to improve quality of life for people facing a diagnosis of advancing heart failure through shared efforts across specialties, services and teams.

In-person benefits

By attending in-person, you will have:

  • networking opportunities – meet our speakers as well as fellow practitioners
  • lunch provided, as well as light refreshments (teas, coffees, biscuits)
  • visit the historical St Christopher’s Hospice and our high-tech facility, the Centre for Awareness and Response to End of Life (CARE)

 

  • Palliative care teams
  • Heart failure teams
  • Clinicians working in either specialty
  • Primary care colleagues
  • Clinicians working in complex care or rapid response teams
  • Clinicians working in urgent care
  • Clinical Commissioning Group members
  • Integrated Care Board members
TimeSession TitleSpeaker
9:30Arrival and Registration 
Chairs:
Marie Cooper, Senior Nurse Advisor, St Christopher’s
Amanda Mayo, Care Director, St Christopher’s
10:00 Welcome and Introduction to the day
Reflect: What questions do you have about heart failure/palliative care interface that you hope will be answered today?
Marie Cooper
10:10Project Background:
Developing an integrated model of community care for patients living with and dying from advanced heart failure
Dr Joy Ross, Lead Palliative Care Consultant, St Christopher’s  
10:20Nobody told me I had heart failure!
Some stories shared about the experience of navigating systems when living with heart failure
Isobel Jackson, Advanced Practitioner Heart Failure/Palliative Care, St Christopher’s
10.50 The National AgendaCarys Barton, HF nurse consultant, BSH/ Imperial College
11.20Morning break
11.40 Collaboration opportunities; academic and practice insights from the researchDr Laura Green, Senior Lecturer in Nursing, The University of Manchester  
12.15 Collaboration in Practice:
An introduction to the amended model; Implementation and experience in practice
Changing referral behaviours
MDM development
Joint visits
Community based interventions
Fiona Hodson, Nurse Consultant, St Christopher’s
Iftekar Gogah, Lead Heart Failure CNS, PRUH
Dr Chris Bell, Croydon Health Services NHS Trust
Eileen Arbenser, Heart Failure Specialist Nurse, Croydon Health Service NHS Trust
12.45Reflect & Connect:
What opportunities exist for you in supporting a more collaborative approach to meet user preferences and requirements?
What do you see as the challenges?
Marie Cooper
13:00           Lunch & Fast Dating Networking
14:00 Innovative Efforts in Practice:
A case study of Isabel Hospice palliative heart failure service – Welwyn Garden City
.
The work done in Somerset integrating services; and the challenges to each locality.
 
May Pheasant, Heart Failure Palliation Clinical Nurse Specialist, Isabel Hospice
Claire Morgan, Clinical Lead for Heart Failure, Dorothy House Hospice
14:30 Optimising delivery of integrated palliative care and heart failureDr Tracey McConell, Lecturer in Palliative and End of Life Care, School of Nursing & Midwifery 
15.00Innovation and Nursing:
The challenges and opportunities   
Louise Cave, Operations Transformation Manager, The Hillingdon Hospitals NHS Foundation Trust 
15.25Reflect, Connect & Act:
Moving from curiosity to action.
Working as part of a bigger system: assets and opportunities.
 Heather Richardson, Director of Academic Learning and Action, St Christopher’s
15:50ReflectionsChair and participants
16:00Close
Joy Ross

Dr Joy Ross

Consultant in Palliative Medicine, St Christopher’s Dr Joy Ross trained at Guy’s and St Thomas’ Medical School. She completed her PhD at Imperial College, London, studying the pharmacogenetics of response to opioids. She has worked as a Palliative Care Consultant at St Joseph’s Hospice, London and then at the Royal Marsden and Royal Brompton Palliative Care Service. She is currently working at St Christopher’s Hospice with a specialist interest in developing palliative care services for the frail elderly and those with non-malignant disease including heart failure.
Read full profile Dr Joy Ross
Fiona Hodson

Fiona Hodson

Consultant Nurse Fiona trained at Guy’s and St Thomas’. She initially worked at St Christopher’s Hospice with Dame Cicely Saunders. She then specialised in cardiology for 26 years including setting up cardiac rehab services, running cardiac support groups and as a valvular research nurse. She then worked as a heart failure CNS both in hospital and running clinics in GP practices. In 2005 she was part of a joint research project between palliative care and cardiology, exploring the palliative care needs of heart failure patients. She then moved to work as a community palliative care CNS at Guys. In 2017…
Read full profile Fiona Hodson

Isobel Jackson

Isobel is a palliative heart failure advanced practitioner at St Christopher’s and has worked in palliative care for approximately eight years and supporting people living with heart failure for three of those years. Her background is mostly in community palliative care but also acute and intensive care.
Read full profile Isobel Jackson
Marie Cooper

Marie Cooper

Senior Nursing Advisor Celebrating Palliative Care Nursing Marie is a nurse with many years’ experience of clinical leadership with an expertise in practice development across a range of care settings. Having delivered change in her previous roles, she now loves working with both individuals and groups who want to develop themselves and their practice. Such opportunities have given her a clarity about the many complex and challenging issues nurses face today, be they practitioners or leaders, engaged in care delivery.
Read full profile Marie Cooper
White woman with blond hair pulled back into one smiling with red lipstick.

Mary Hodgson

Head of Community Action & Learning/CARE Co-Lead, St Christopher’s Hospice. Mary is an experienced community facilitator and researcher, and is interested in how people understand societal challenges and want to create change.  Mary has a PhD on how people perceive inequality and why they seek to change it, and has worked in charities, social innovation and change leadership programmes as well as on international research and action initiatives. She currently leads a team of people creating participation opportunities, new initiatives and tackling societal challenges with community members and professionals in London.
Read full profile Mary Hodgson
Laura Green

Laura Green

Laura Green is Programme Director of the Bachelors and Integrated Masters in Nursing at the University of Manchester, and a lecturer specialising in palliative and end of life care. In the past she has lectured in palliative care at the University of Bradford and worked as Clinical Academic Research Fellow for Marie Curie Hospice Bradford. Her clinical experience is as a Clinical Nurse Specialist in Palliative Care, and a nurse working in the community and the hospice settings. Her doctoral research is an ethnography of dying older people in an acute hospital ward in the UK. She is co-editor of…
Read full profile Laura Green
Louise Cave

Louise Cave

Louise is an Operations Transformation Manager at The Hillingdon Hospitals NHS Foundation Trust, where she has led the implementation of the new electronic patient record. She has had a varied career so far working across the NHS from Haematology nursing to digital nursing. In 2022 Louise was a Florence Nightingale Digital Leadership Fellow, working within NHS England’s Transformation directorate. She led the work on the digital nursing research agenda, ambition five of the Chief Nurse’s strategic plan for research. Louise is passionate about encouraging nurses to strive for digital transformation. Her primary area of interest is using data to enhance…
Read full profile Louise Cave

Carys Barton

Carys is a Heart Failure Nurse Consultant at Imperial College Healthcare Trust in London. She has been elected as the first non-medic Chair Elect of the British Society for Heart Failure (BSH) 2023-2025, deputy Chair 2021-2023. Prior to this Chair BSH Nurse Forum 2019-21 and board observer 2017 -2019. Other positions currently held are junior secretary and British association for nursing in cardiovascular care (BANCC) council member, committee member of the British Geriatric Society (BGS) Cardiovascular Special Interest Group, Heart Failure Policy Network, Pumping Marvellous clinical committee, and Cardio renal scientific committee. She is committed to supporting the education and…
Read full profile Carys Barton
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Heather Richardson

Heather Richardson currently works as Director of Academic Learning and Action in the Professional Learning team at St Christopher’s CARE. She previously worked as Joint Chief Executive, then CEO of St Christopher’s Hospice over a period of eight years. In the past she has held the role of National Clinical Lead for Hospice UK, and worked as Clinical Director, then Strategy Advisor to St. Joseph’s Hospice in East London prior to her move at St Christopher’s. She has also worked as an associate with the Innovation Unit based in London. Heather is a registered general and mental health nurse and…
Read full profile Heather Richardson
Amanda Mayo

Amanda Mayo

Care Director Amanda joined St Christopher’s in January 2019. She is the Director responsible for all care related activities in the Hospice. Care related activities include; medicine, community nursing, inpatient unit, allied healthcare professionals, welfare, spiritual care; social work and arts and music therapy. An Advanced Nurse Practitioner with a background in urgent, primary and community care having worked in a GP Federation commissioning services in South West London; working as the Head of Nursing and Quality in a community provider in South East London and working in the private sector as a Service Director for the development of NHS111…
Read full profile Amanda Mayo

Claire Morgan

Claire has been a nurse for 24 years working in both primary and secondary care, with the last 9 years in specialist palliative care. Having recently taken on the role of Clinical Lead for Heart Failure in Palliative and End of Life Care at Dorothy House Hospice, she has established a service that provides patients and their caregivers with the same level of end of life care received by those with cancer. This involves assessing and supporting patients’ psychological, social and physical issues and engaging with complex symptom control issues.  As a practitioner Claire is committed to partnership working. In establishing this…
Read full profile Claire Morgan
May Pheasant

May Pheasant

May Pheasant has been heart failure palliation Clinical Nurse Specialist at Isabel Hospice since 2018.  She was previously the specialist palliative care CNS at East and North Hertfordshire NHS Trust (QEII and Lister hospitals) for 16 years.  May holds a degree in Palliative Nursing.  Her role is to ensure heart failure patients receive the same level of support, care and advance care planning as patients with cancer.  
Read full profile May Pheasant

Dr Tracey McConnell

Dr Tracey McConnell is a Lecturer in Palliative and End-of-life care in the School of Nursing and Midwifery at Queen’s University Belfast (QUB), and a Marie Curie Honorary Research Fellow. Her research interests include improving access to palliative care for those with cancer and non-cancer life-limiting conditions (e.g., integration of palliative care and heart failure services); Music Therapy within palliative and/or end-of-life care, including bereavement; and alleviating loneliness among those impacted by life-limiting illness.
Read full profile Dr Tracey McConnell

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