Please read the latest coronavirus advice before visiting any of the hospice sites.

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Guide | Toolkit

‘Do you see us?’ – Carers with no recourse to public funds who are supporting loved ones at the end of their life

A guide for hospice and palliative care staff

Download

“I don’t know what to say…”

An introductory study day on communication skills for front line support staff

Find out more

Leaflet

Activities for all

There are lots of activities happening at our Sydenham site that are open to anyone and everyone. Whether you’re under our care, visiting a friend or relative, or just dropping in for a cuppa; you are welcome to attend any of these activities.
(more…)

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Leaflet

Additional information on medicines used in symptom control

This leaflet contains further information on your medicines and the way that we sometimes use them in palliative care. If you have any more questions please ask your doctor, nurse or pharmacist. (more…)

Read leaflet online   |   Download leaflet (PDF)
Videos

Administration of injection video guide and paper prompts

This audio-visual resource was developed at the request of NHS nurse educators tasked with supporting and integrating newly appointed international nurse recruits.

Watch video https://www.youtube.com/watch?v=KKHqOXDgX5c&feature=youtu.be
Documents

Advance Care Plan

Advance Care Planning is a process of discussion between an individual and their care provider. Wishes and preferences are documented in an Advance Care Plan booklet which becomes a patient held record. This has been designed to be provided in the hard copy format which you can obtain from St Christopher’s bookshop. Please do not print from the website. Thank you.

Download
Leaflet

Advance Care Planning

This leaflet explains how to consider your choices and preferences for the future – if you have any other questions, we hope you will talk them over with a member of staff who will be glad to help.
(more…)

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Guidance

Advance Care Planning by phone or video

This framework has been designed to support GPs to have advance care planning conversations
with patients by phone or video, in the context of COVID-19. It is a tool to help you have honest
and open conversations.

https://compassionindying.org.uk/wp-content/uploads/2020/04/ACP-conversations-via-Phone-or-Video-Call-v1.pdf

Advance Care Planning Reconsidered

A study day for all health and social care professionals to learn more about this essential element of end of life care and to reflect and build on their interpersonal communication skills.

Find out more

Advance Care Planning

Advanced Assessment in Enhancing Palliative Care Practice

Helpline

Advice and support dedicated telephone line for professionals

If you need any advice or support during this time, please call us on 020 8768 4582

publications

Age-attuned Hospice care

An opportunity to better end of life care for older people

Report by Caroline Nicholson and Heather Richardson

“This document is a “call to arms” to the Hospice movement to recognise that there are a large group of people who currently are denied palliative care…This is a very timely publication. The challenge to us all is to reflect and then act to improve care for our frail older patients.”

Dr Eileen Burns
President of the British Geriatric Society, Consultant in Older People’s Medicine

Download
Guidance

Anticipatory prescribing for symptom control

Anticipatory prescribing refers to charts and, where appropriate, medications that are left in a person’s usual place of residence for use by visiting clinicians should problems arise with uncontrolled symptoms.

  • Patients are most vulnerable to these in the last days of life and when they are no longer able to swallow
  • The common ones are pain, nausea and vomiting, distress and agitation and respiratory secretions
  • The guidance below covers these.

There has been controversy over the best practice for clinicians to adopt following the widely publicised Gosport Enquiry.

  • General, national guidance and policies are currently under development and several members of the clinical team at St Christopher’s are closely involved with this work
  • Our current guidance reflects the developing thinking, is subject to regular review and scrutiny and will be modified as further evidence emerges around the best and safest practice to adopt
  • Our 24 hour specialist advice and support is there to back up this general guidance to ensure, as far as possible, that clinical decisions are individualised and safe.


DOWNLOAD ANTICIPATORY PRESCRIBING GUIDANCE FOR FRAIL ELDERLY PATIENTS (PDF)

DOWNLOAD ANTICIPATORY PRESCRIBING GUIDANCE FOR ADULTS (PDF)
DOWNLOAD PAN LONDON SYMPTOM CONTROL MEDICATION AUTHORISATION AND ADMINISTRATION RECORD (PDF)

Bereavement support

ARC – Antenatal Results and Choices

Helping parents and professionals through antenatal screening

https://www.arc-uk.org/
Articles

Avoid frailty score in Covid-19 guidance when assessing LD patients

Nursing Times article advising clinicians not to use the Clinical Frailty Scale (CFS) when assessing whether people with learning disabilities and other conditions should be admitted to critical care. 

https://www.nursingtimes.net/news/policies-and-guidance/avoid-frailty-score-in-covid-19-guidance-when-assessing-ld-patients-24-03-2020/
Weblinks and Resource Lists

Baby Loss

Support for women and their partners who have suffered a miscarriage or stillbirth

http://www.babyloss.com/
Leaflet

Bereavement

Most people will experience bereavement at some time in their life. Everyone reacts to their loss in their own unique way

Grief can be very painful and may give rise to feelings and thoughts that you don’t expect. You may find the information in this leaflet helpful. (more…)

Read leaflet online   |   Download leaflet (PDF)
Bereavement support | Helpline

Bereavement Advice Centre

Practical advice

0800 634 9494 (9am-5pm)
https://www.bereavementadvice.org/
Bereavement support

Bereavement support in the Croydon and South London area from Rowland Brothers Funeral Directors

Answers, advice and support from the Rowland Brothers

https://rowlandbrothers.com/arranging-a-funeral/bereavement-support/
Bereavement support

Brake

Supporting people bereaved and seriously injured by road crashes

https://www.brake.org.uk/
Leaflet

Breathlessness

This leaflet will provide you with basic advice to help you manage your breathlessness. It is intended to act as a reminder following a physiotherapy session – please ask if you have any questions. (more…)

Read leaflet online   |   Download leaflet (PDF)
Bereavement support | Helpline

Bromley Bereavement Services

Bereavement Support in the Bromley area

0208 768 4599
https://www.stchristophers.org.uk/bromley-bereavement-service
Leaflet

Bromley Care Coordination at St Christopher’s

Helping you to get the right care, in the right place, at the right time

Who we are

Our friendly team of clinical nurse specialists, staff nurses and healthcare assistants are on hand to support people living in Bromley with advanced illness and frailty enabling them to remain at home and live well.

(more…)

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Leaflet

Bromley Care Coordination at St Christopher’s – Information for Professionals

Who we are

Bromley Care Coordination (BCC) is provided by our expert team at St Christopher’s and commissioned by Bromley Clinical Comissioning Group. The service enables patients with advanced illness, multi-morbidities and frailty to receive timely and coordinated care in the community.

(more…)

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Bungee Jumps

Take the leap of faith looking over the magnificent landscape and feel the incredible rush of freefall!

Calling everyone with a taste for adventure, Bungee Jumping is an activity that the vast majority of people are capable of undertaking. You can bungee jump for St Christopher’s at anytime throughout the year.

We ask that you pay £75 registration fee to cover the cost of your jump, then raise £150 sponsorship to which will go directly to supporting the work of St Christopher’s.

Please visit the UK Bungee Club website to book yours today or call UK Bungee on 0845 319 5767 for group bookings. Don’t forget to let us know you are jumping for St Christopher’s so we can support you with fundraising tips, ideas, and a t-shirt to wear on the day!

View event information
Bereavement support | Helpline

Candle

Support for children and their families

0208 768 4500
https://www.stchristophers.org.uk/candle
Leaflet

Candle: Children and Funerals

Parents and carers want to do the best for their children, and it is very hard to know what is best for them when a death has happened. You are trying to come to terms with what has happened, cope with painful and difficult feelings, and there are so many decisions and choices to be made.

This leaflet has been written to help you think about your children and the funeral, why they should have the chance to go, and how to answer some of their questions.

(more…)

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Children and funerals

Leaflet

Candle: Children, Young People and Loss

St Christopher’s has been providing bereavement counselling to patients’ families for over 50 years. St Christopher’s Candle Child Bereavement Service extends this support to all children, young people and their families in the south east London area, covering the boroughs of Croydon, Bromley, Lewisham, Southwark and Lambeth. Any parent, carer, teacher or healthcare professional can make a referral to the Candle Child Bereavement Service. Young people aged over 16 can refer themselves.

We also offer a specialist training, advice and consultancy service to schools and other agencies working with children facing bereavement.

(more…)

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Children, young people and loss

Leaflet

Candle: How to help your bereaved child

How to help your bereaved child

You may be bereaved yourself, and may be finding it hard to keep your child’s needs in mind with all that is happening.The following points are a guide to help you focus on what is going on for them. (more…)

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Leaflet

Candle: Someone close has died

How to help a bereaved young person – a guide for adults

Every year many young people experience the death of someone they are close to. Some of these deaths will be sudden and some will be after a long illness, but all losses can be difficult for teenagers. This leaflet is designed to help you understand some of the aspects of a death that are hard for young people and to give some ideas about how you can offer support. (more…)

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Leaflet

Candle: Someone has died suddenly

Helping your child

Everyone is very shocked when someone dies suddenly. There has been no time to prepare and often no warning that the person was going to die. Shock affects adults and children physically and emotionally, and some of the effects you may notice are feeling dizzy or sick, shaky, shivery, hot and cold. After a shock we often feel very unsafe for a while, and need to take things quietly. This leaflet mentions some of the things you and your child may be feeling. (more…)

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Bereavement support

Care for the family – widowed young support

Leaflet

Caring for someone with advanced dementia

This leaflet has been compiled by nurses from the Care Home Project Team at St Christopher’s in collaboration with nurses from dementia care units to help support relatives of people with advanced dementia living and dying in care homes. (more…)

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Guidance

Caring for your dying relative at home with COVID-19

This guidance is produced to help support people who are caring for someone who is dying at home from COVID-19 infection

https://www.hospiceuk.org/docs/default-source/echo/covid-19-echo/covid-19_care-at-home_guide_final.pdf
Bereavement support | Helpline

Child Bereavement UK

Helpline (9-5pm)

0800 028 8840
https://www.childbereavementuk.org/
Bereavement support | Helpline

Child Death Helpline

A dedicated helpline that offers support to anyone affected by the death of child of any age, under any circumstances however recent or long ago

0800 282 986 or 0808 800 6019
http://childdeathhelpline.org.uk/
Bereavement support | Helpline

Childline

24 hour support line for under 25 years and their relatives

0800 1111 (24 hour support line)
https://www.childline.org.uk/

Cicely Saunders Society – Open Meetings

Heart and Mind

Find out more

Guidance

Clinical guide for the management of palliative care in hospital during the coronavirus pandemic

Leaflet

Clostridium difficile (C.diff)

This leaflet gives you information on Clostridium difficile (C.diff) and how St Christopher’s is working to control it. (more…)

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Leaflet

Cognitive Behavioural Therapy

You have been referred to the cognitive behavioural therapy (CBT) clinic here at St Christopher’s Hospice either because you have asked for some help or because a member of the team has suggested that you come. This leaflet aims to answer some of the more common questions about CBT and help you understand a little more about what to expect. (more…)

Read leaflet online   |   Download leaflet (PDF)

Cognitive Behavioural Therapy (CBT) Community of Practice

For CBT practitioners

Find out more

Leaflet

Coming to St Christopher’s Hospice as an inpatient

This leaflet explains what you can expect as an inpatient at St Christopher’s. We hope to answer your concerns by concentrating on the most commonly asked questions. If you have any more
questions please ask your doctor or nurse.
(more…)

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Guidance

Community palliative, end of life and bereavement care in the Covid-19 pandemic

A guide to end of life care symptom control when a person is dying from Covid-19 for General Practice Teams, prepared by the Royal College of General Practitioners and the Association for Palliative Medicine.

https://elearning.rcgp.org.uk/pluginfile.php/149457/mod_page/content/22/COVID%20Community%20symptom%20control%20and%20end%20of%20life%20care%20for%20General%20Practice%20FINAL%20v2.docx.pdf

Compassionate Care with Namaste Training

A study day covering all the key element of this multi-dimensional programme designed to improve and enrich the lives of all, including people living with dementia

Find out more

Compassionate Care with Namaste Training

Leaflet

Complementary therapies

This leaflet explains about complementary therapies available at St Christopher’s and Harris HospisCare – if you have any other questions, we hope you will talk them over with a member of staff who will be glad to help. If you are thinking of using another complementary therapy service, please ask us for further information. (more…)

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Helpline

Confidential support for individual Care Home staff

We have had several requests from Care Homes asking if we can offer support to individual staff. This is why we have created a new staff support service called Hear For You.

What is Hear For You?

Hear For You offers confidential telephone and email support to all care home staff. It is provided by experienced staff and counsellors here at St Christopher’s. Think of this as a ‘check in’ service to support your wellbeing. You may want to talk about a difficult moment at work, worries about your family or friends or simply offload for a few minutes. Whatever you need we’ll do our best to support you – your emotional wellbeing is very important to us.

How do I access support?

Simply email us at hearforyou@stchristophers.org.uk or call us on 020 8768 4688. Let us know which CCG you work in, and where possible the care home you work for. This will remain completely confidential. We will be available between 9am and 5pm, Monday to Friday. If you want to book in a call outside of these times simply email us and we’ll do our best to fit this in for you.

Is this support confidential?

Please rest assured that everything you share will remain confidential unless we have a concern that falls within our safeguarding protocol.

Virtual learning | Webinar

Connect with CARE webinar series

A series of four special webinars each introducing a new initiative or model which we believe will have a positive impact on the future of palliative and end of life care

Find out more

x zoom helena

Leaflet

Consent – what you have a right to expect

1 What does consent really mean?

Before any doctor, nurse or therapist examines or treats you, they must seek your permission or ‘consent’ to do so.
(more…)

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Leaflet

Contact Precautions

Why do I need to supported with care using ‘contact precautions’?

If you are being cared for in this way, it may be because you are infected with a micro-organism that can be passed to other people, or because you have symptoms of a contagious disease. For example, you might have a rash that could mean you have chicken pox or shingles, or, if you have diarrhoea and vomiting this could mean you have a gastrointestinal infection. If any of this applies to you, we will explain the reasons for needing to use these extra precautions. (more…)

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Documents

Continuous drug stock balance chart

Documents

Continuous SC Infusion Syringe Driver Charts

Documents

Controlled drug stock balance chart

Guidance

Coordinate My Care

Coordinate My Care is an innovative NHS service that builds medical care around the wishes of each patient. You create the plan with your GP: then we share it with all the healthcare professionals who might treat you. So everyone looking after you knows exactly what you want.

https://www.coordinatemycare.co.uk/
Guidance

Coordinate My Care quick reference guide

Bereavement support

Coping with Bereavement guide from Age UK

Age UK is the leading charity for older people. Visit Age UK for help, information and advice.

https://www.which.co.uk/later-life-care/end-of-life/coping-with-bereavement
Leaflet

Coping with dying

This leaflet describes some of the physical changes that happen to people as they start to die. It anticipates some of the questions you may want to ask about what is happening and why, and encourages you to ask for further help or information if there is anything at all that is worrying you.
(more…)

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Leaflet

Coping with feelings of depression

1 Coping with feelings of depression

There is no right or wrong way to feel when you or someone close to you has a terminal illness. You may experience a range of emotions, at different times. You may feel shock, fear, anger and resentment. Or you may feel helpless, sad, frustrated or perhaps experience relief and acceptance. You may also feel isolated and alone, even if you have family and friends around you.
(more…)

Read leaflet online   |   Download leaflet (PDF)
Weblinks and Resource Lists

Coronavirus (COVID-19) if you’re affected by terminal illness

Marie Curie’s advice on understanding COVID-19 if you’re affected by a terminal illness

https://www.mariecurie.org.uk/help/support/coronavirus
Weblinks and Resource Lists

Coronavirus (Covid-19) if you’re affected by terminal illness

Marie Curie’s advice on understanding covid-19 if you’re affected by a terminal illness

https://www.mariecurie.org.uk/help/support/coronavirus
Guidance

Coronavirus (Covid-19) if you’re affected by terminal illness

Marie Curie’s advice on understanding Covid-19 if you’re affected by a terminal illness:

https://www.mariecurie.org.uk/help/support/coronavirus
Guidance

Coronavirus (COVID-19): looking after people who lack mental capacity

Guidance for health and social care staff who are caring for, or treating, a person who lacks the relevant mental capacity.

https://www.gov.uk/government/publications/coronavirus-covid-19-looking-after-people-who-lack-mental-capacity
Virtual learning

Coronavirus education programme for End of Life Care

This programme is freely available to colleagues working in the NHS, independent sector and social care.

https://www.e-lfh.org.uk/programmes/coronavirus/
Weblinks and Resource Lists

Coronavirus resource hub

The Royal College of GP’s coronavirus resource hub which includes a palliative care section

https://elearning.rcgp.org.uk/mod/page/view.php?id=10537
Weblinks and Resource Lists

Coronavirus: resources for people with a learning disability

Learning Disability Wales guidance resources for Covid-19 

https://www.ldw.org.uk/project/coronavirus/https://www.ldw.org.uk/project/coronavirus/
Bereavement support

Counselling Directory

Connecting you with help for your mental health

https://www.counselling-directory.org.uk/
Weblinks and Resource Lists

Covid-19 Learning Disability Resources

Carers in Southampton, Covid 19 learning disability resources

https://www.carersinsouthampton.co.uk/covid-19-learning-disability-resources
Guidance

COVID-19 rapid guideline: critical care in adults

National Institute for Health and Care Excellence, Covid 19 Guidance on supporting staff who are self-isolating, communicating with patients, remote working and reviewing and stopping critical care treatment 

https://www.nice.org.uk/guidance/ng159
Webinar

COVID-19 Second Wave webinar series

Delivered by our team of experts to provide essential knowledge and skills

Find out more

x nurses in ppe

Covid-19 useful links

Community palliative, end of life and bereavement care in the Covid-19 pandemic

A guide to end of life care symptom control when a person is dying from Covid-19 for General Practice Teams, prepared by the Royal College of General Practitioners and the Association for Palliative Medicine.

https://elearning.rcgp.org.uk/pluginfile.php/149457/mod_page/content/22/COVID%20Community%20symptom%20control%20and%20end%20of%20life%20care%20for%20General%20Practice%20FINAL%20v2.docx.pdf
Guidance

COVID-19: Guidance for community and inpatient services

Guidance

COVID-19: Our Action Plan for Adult Social Care

Bereavement support | Helpline

Cruse

Nationwide Bereavement Support

Cruse provides support services for people across the UK who have been bereaved. The helpline offers listening support and practical advice related to bereavement, including dealing with an estate, debt and arranging a funeral.

0808 808 1677
https://www.cruse.org.uk/

Dementia programme

A new programme to help you to better understand and support people with dementia at the end of life

Find out more

Award in Awareness of Dementia (with added learning on long term conditions and frailty) City & Guilds Level 3

Videos

Depression and low mood

Session 7 of the Fit for Life Programme

Low mood is common and maybe even more prevalent at this time. Lauren will talk you though the common things you may feel and how to identify if you need more support as well as strategies that might help you.

(more…)

Watch video

Leaflet

Difficulty Sleeping

Introduction

Lots of people have a problem with sleeping at some time during their lives. If you are ill, sleep can be hard because of anxiety, worry about treatment, fears about the future, or just because you are going through a stressful time in your life. (more…)

Read leaflet online   |   Download leaflet (PDF)
Leaflet

Do I need to make a Will?

This leaflet is intended for general guidance only and we suggest that you obtain proper legal advice if you are in doubt about the meaning of anything. Some of the legal terms used in this leaflet are explained below. (more…)

Read leaflet online   |   Download leaflet (PDF)
Leaflet

Eating and drinking when ill

This leaflet aims to answer frequently asked questions about appetite, weight loss and the need for fluids or artificial hydration (fluid intake given by a drip) if you, or the person you are caring for, become very ill. (more…)

Read leaflet online   |   Download leaflet (PDF)
Videos

Eating well

Session 3 of the Fit for Life programme

In this session our Dietician, Lorna, will explore the principles of healthy eating and how you can put this into practice. You can also visit the British Dietetic Association website for more healthy eating resources.

(more…)

Watch video

ECHO sessions for care homes in South East London and Croydon

For care homes in South East London and Croydon

Find out more

Guidance

End of Life Care in Frailty

The aim of this guidance is to support clinicians and others in considering the needs of and providing high quality care for frail older people as they move towards the end of their lives. 

https://www.bgs.org.uk/resources/resource-series/end-of-life-care-in-frailty
Articles

End of Life Journal

End of Life Journal was a free, online, peer-reviewed journal that published articles on all aspects of nursing practice relating to end-of-life care.

The journal was primarily aimed at generalist nurses working in hospital, community and care home settings. Many articles will also be of interest to the palliative care nursing audience as well as members of the wider multidisciplinary team.

The journal focused on care for patients with both malignant and non-malignant disease and their family and friends.

https://www.stchristophers.org.uk/end-of-life-journal/
Videos

Exercise

Session 2 of the Fit for Life programme

In this video we hope to give you an understanding of what exercise is, the different types of exercise, what you might want to exercise and how you can put this into practice. The guidance here is general and may not be appropriate to you.

(more…)

Watch video

Videos

Exercise at home

A set of four videos designed to help people through exercise

https://www.stchristophers.org.uk/videos/exercises/
Videos

Exercise at home

A set of four videos designed to help people through exercise.

https://www.stchristophers.org.uk/videos/exercises/
Videos

Exercise Group – David’s Seated Exercises

Leaflet

Extended spectrum beta-lactamases (ESBLs)

Fabrics and Threads Group presents Textiles Exhibition

St. Christopher’s Fabrics and Threads group will be exhibiting a selection of their quilts and textiles work.

Come along to an inspiring evening, with the opportunity to meet the artists and look forward to enjoying some wine and cheese whilst viewing these incredible works of art!

View event information

Facing Death Creatively conference

A one-day conference, featuring special keynote speaker Michael Rosen, to explore ways in which creative arts provide support and facilitate meaning at the end of life – as exemplified during the pandemic

Find out more

Bereavement support

Find a Therapist

Therapist finder from BACP

https://www.bacp.co.uk/search/Therapists
Videos

Fit for Life: Course introduction

Part of the Fit for Life programme

The aim of Fit for Life is to support your physical and emotional wellbeing through video sessions on exercise, sleep, mood and eating well amongst others. With plenty of advice and support available via email, this free series of videos will give you food for thought and the tools that you need to take action.

(more…)

Watch video

Videos

Fit for Life: Course summary

Part of the Fit for Life programme

Watch video

Foundations in Cognitive Behavioural Therapy (CBT)

Essential knowledge and skills

Find out more

Foundations of Palliative Care

Frailty and End of Life: It’s time to act

Frailty and End of Life. Will you take action?

Find out more

rb BBCHorizonshots HORIZONBETTERDEATH

Training

Free critical training to help care home staff

Our End of Life Care webinar series launched April 16 and is free to all care homes. In this three-part weekly series, we share our expertise in practices such as Advance Care Planning, Coordinate my Care (myCMC), and Challenging Conversations – covering the important aspects of communications around death and dying during Covid-19.

https://www.stchristophers.org.uk/stc_education_event/virtual-learning/
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