Privacy statement and notice
St Christopher’s Hospice takes privacy and the protection of personal and sensitive information seriously.
Privacy Statement
St Christopher’s Hospice takes privacy and the protection of personal and sensitive information seriously. We have robust technical and organisational systems and measures in place to manage and protect all personal data. These measures include data encryption, up to date security software and controls to guard against unauthorised access, unlawful processing, accidental loss, damage or destruction.
Our Privacy notice explains how we use and protect your personal information, to show that we are adhering to the United Kingdom General Data Protection Regulation (UK GDPR) and the Data Protection Act 2018 (DPA).
It also explains how we collect and use the personal information that you provide to us whether, in person, online or via phone, email, letter or other correspondence, this includes data from our website and sets out how St Christopher’s Hospice uses and protects any information that you give us.
Privacy Notice
St Christopher’s Hospice is committed to protecting your privacy and right to confidentiality. We comply with UK GDPR, DPA and NHS requirements concerning confidentiality and information security standards.
This notice explains how we use any personal information we collect about you based on your relationship with St Christopher’s Hospice, detailing how we collect data, how we store it, how we use it and protect it.
St Christopher’s Hospice is a registered charity (Charity Number 210667). St Christopher’s Hospice exists to promote and provide skilled and compassionate palliative care of the highest quality. The UK GDPR and DPA require every organisation that processes personal information to be registered with the Information Commissioner’s Office.
Our registration number is Z6199614.
Trading’s registration number is ZA875113 and Trustees Pensions number is ZA309448.
You can view our full Data Protection Policy online here or request a copy of the policy by contacting us at:
Information Governance & Data Protection Manager
St Christopher’s Hospice
51-59 Lawrie Park Road, Sydenham
London, SE26 6DZ
020 8768 4500
Email: privacy@stchristophers.org.uk
Your information: how we use and keep it
A useful leaflet is available called ‘Your information: how we use and keep it’
Quick links
- Withdrawing consent
- How we collect information
- Photography and Video Consent
- Patients and Service Users -Adults
- Service Users – Children
- Bereavement Service Users – Adults and Children
- Employees
- Volunteers
- Fundraising/Supporters
- Education and Library Services
- Consent for under 16s
- Your rights
- How to exercise your rights
- Caldicott Guardian
- Changes to the Policy
- How to complain
- Cookies
Withdrawing Consent
Where we process your data under the lawful basis of consent, you have the right to withdraw your consent at any time. You can do this by contacting us. We also send links with all communications that allow you to with draw consent by following the link.
Please see below our photography and videography consent information. If you would like to withdraw your consent to this type of processing at any point it is your right to do so. To withdraw consent please click ‘show more details’ and complete the short form.y
To exercise any of these rights, please contact us at the address below. We will then send you a form so you can provide us with as much information as possible about the nature of your request. This will help us locate your records. There is no requirement to complete this form to make a valid request, however, it has been designed to capture the information we may reasonably require to process your request effectively.
Please address any of the above requests, or any other request about your information in writing via post or email to our Data Protection Officer at
Information Governance & Data Protection Officer
St Christopher’s Hospice
51-59 Lawrie Park Road
London
SE26 6DZ
Email: privacy@stchristophers.org.uk
PHOTOGRAPHY & VIDEOGRAPHY CONSENT
At mass participation events St Christopher’s can take photographs and video content. If you attend one of these events, your image may be captured.
The photographs and video footage taken are processed securely and in compliance with data protection legislation.
Our lawful basis for the processing is legitimate interests, with our interests being to promote the event and St Christopher’s.
We may share these photographs and video content on external platforms, including but not limited to LinkedIn, Instagram, Facebook, TikTok, X and also on our website stchristophers.org.uk. We may also share images in printed communications, future promotional materials and at future events.
If you attend one of these events and do not wish to be captured please speak to a member of staff or event representative. You can also contact the communications team directly on communications@stchristophers.org.uk.
PATIENTS & SERVICE USERS – ADULTS
The Information We Collect About You
We obtain personal information from you when you are referred or enquire about our services and activities, send or receive an email, contact us via a telephone or mobile call, or otherwise provide us with your personal information.
We may obtain your personal information from third party data where they have a lawful basis to share your information to us, i.e. a referral for care.
If you are referred to one of our clinical services, we will collect data from you and may also receive your personal data from and share it, where necessary, with other healthcare providers and other services who are involved with your care.
In order to provide complete care, we may also collect some information about family members and carers.
Where Next of Kin or family details are provided within clinical services, this information will be shared with our Fundraising team to enable invitation to memorial events to be sent to loved ones. In addition, we may also share this information with our Spiritual care team to enable an offer of Spiritual support for loved ones. Information is also passed to our Bereavement Team when a patient dies to enable an offer of Bereavement Support to be made directly to a patient’s loved ones. These are sent on referral after a patient or family member has enquired, consent is always obtained.
If you stay at or visit our premises, such as our Inpatient Unit, we may collect your image on CCTV. We use CCTV to property, staff and patients. We may also take photographic images of you for medical purposes, with your prior consent, such as in the case of pressure ulcers. These will be processed only to assist in your care. We also receive and share data about our patients and their families and carers from other healthcare providers to support the provision of your care.
SERVICE USERS – CHILDREN
As a child service user, you are entitled to the same rights as adult service users. We collect the same type of information about you as we do from the adults, process it for the same reasons and hold your data in the same way.
Where your data is held with the under the lawful basis of consent we may need to gain the consent of your parents/guardian but where possible we will ask you for your consent. Your details are kept securely with restricted access and handled with the greatest respect for privacy.
We may share your details with our Candle Child Bereavement Service, which provides bereavement services for children. Please see our children’s privacy notice where we explain how we use your data more clearly for you.
BEREAVEMENT SERVICE USERS – ADULTS AND CHILDREN
EMPLOYEES
The Information We Collect About You
When you apply to work at St Christopher’s Hospice (for a temporary or permanent position, or as a contractor) we will only use the information you give us to process your application and to monitor recruitment statistics unless you are the employed by us If we want to disclose information to someone outside the hospice – for example, if we need a reference, or need to get a criminal record check from the Disclosure and Barring Service – we will make sure we tell you beforehand unless we are required to disclose this information by law. Unless your application is successful we will retain your application data for 6 months before securely deleting it.
VOLUNTEERS
What Information We Collect About You
As appropriate for a volunteer role, we may ask:
- Emergency contact information
- Mobile phone number
- Contact details for referees
- Your interests, experience, relevant qualifications
- Your driving licence records
- Any previous convictions
- Your DBS
- Relevant medical conditions
- If you have been bereaved in the last 18 months
FUNDRAISING/SUPPORTERS
Where We Collect Information About You
We collect information from you directly which you provide when you fill in any of our online or printed forms to make a donation, sign up to an event or buy a product. Sometimes, this information is collected by an organisation working on our behalf, but we are responsible for your data at all times.
We also collect information shared with us by independent organisations. These third parties will only share your information with us when you have given permission for them to do so.
PROFESSIONAL LEARNING & LIBRARY SERVICES
Professional Learning training programmes and conferences are delivered by St Christopher’s Hospice through the Education Department to delegates who may be individuals employed by or volunteer for St Christopher’s, or who may be external to the hospice and from countries outside the UK/EU.
The library is open to all staff who may wish to borrow books and other resources.
FURTHER INFORMATION
Consent for Under 16s
We are committed to protecting the privacy of the young people that engage with us through our website and at fundraising events. Our fundraising events also request specific information about the age of participants. Anyone under the age of 16 must obtain parental or guardian consent before participating in an event organised by St Christopher’s Hospice. We have a child friendly privacy notice (available here).
We gather non-identifiable general information from the use of our websites such as pages visited and areas that are of most interest to users. We use this information to improve our website and make it a better experience for everyone. More information can be found in the cookies section below.
Your Rights
Under the UK General Data Protection Regulation, you have the following rights regarding the processing of your data. Note, some are these rights are not absolute and only apply in some circumstances:
- The right to access your personal information
- The right to edit and update your personal information
- The right to request to have your personal information deleted
- The right to restrict processing of your personal information
- The right to object to the processing of your personal information
- The right to data portability
- The right to lodge a complaint with a supervisory authority
We do not carry out automated decision making or profiling.
1. The right to access your personal information
You have a right to obtain confirmation that your personal information is being processed. You also have the right to request a copy of your personal information we hold.
You may be required to provide proof of your identity by providing a valid photographic identity document such as a passport or photocard drivers licence. Your request will be processed within 1 month of receipt of your request and all the relevant information we require.
2. The right to edit and update your personal information
The accuracy of your personal information is important to us. You can ask us to rectify any incorrect data we hold about you including your address and contact details at any time.
3. The right to request to have your personal information deleted
In some circumstances you have the right to request the deletion of your personal information which we will review on a case by case basis.
4. The right to restrict processing of your personal information
You have the right to ‘block’ or suppress processing of your personal data. However, we may continue to store your data but will no longer process it. We do this by retaining just enough of your personal information so we can ensure that the restriction is respected in the future.
5. The right to object
In some circumstances you have the right to object to your personal information being processed. This includes for fundraising, marketing (including profiling) and for research purposes.
Please provide as much information as possible about the nature of your contact with us to help us locate your records. Any changes you have requested may take 28 days before they take effect.
If we process your personal information for the exercise or defence of legal claims, or we can demonstrate compelling grounds that override your rights and freedoms, we may not be able to fulfil your request. However, we will contact you to discuss further.
6. Your right to lodge a complaint with a supervisory authority
We expect to be able to resolve any complaints that you might have concerning our services or events. We therefore ask that you give us the opportunity to do so in the first instance. You, however, have the right to lodge a complaint or seek advice from a supervisory authority. Please contact If you wish to lodge a complaint or seek advice from a supervisory authority please contact:
The Office of the Information Commissioner
Wycliffe House
Water Lane
Wilmslow
Cheshire
SK9 5AF
Tel: +44 (0) 01625 545 745
Website: www.ico.org.uk
How to exercise your rights (make a request for your data)
You can request access to your data, or exercise any of your rights under the UK GDPR, by contacting us in writing via post or email.
Please use the contact details provided below and clearly state which information you are requesting or which right you wish to exercise.
To help us process your request efficiently, include as much detail as possible.
We may need to ask for proof of photo identification to verify your identity.
Please note: You may only request your own personal data unless you are acting on someone’s behalf as a parent, carer, or have legal authority such as lasting power of attorney.
Address your request to;
Information Governance Manager & DPO
St Christopher’s Hospice
51-59 Lawrie Park Road, Sydenham
London, SE26 6DZ
Tel: 020 8768 4500
Email: privacy@stchristophers.org.uk
Caldicott Guardian
What is a Caldicott Guardian?
A Caldicott Guardian is a senior person responsible for protecting the confidentiality of patients’ and service users’ information. They ensure that personal data is used appropriately, balancing the need for confidentiality with the necessity of sharing information for safe and effective care.
The Caldicott Principles guide their work, ensuring that information is only used when necessary and that individuals’ rights to privacy are upheld.
Why is this role important?
The Caldicott Guardian helps ensure that your personal health information is handled responsibly and ethically. They make sure that the right people have access to the right information at the right time—protecting privacy while enabling good care.
How to contact the Caldicott Guardian
If you have concerns about how your health information is used or shared, you can contact our Caldicott Guardian:
Amanda Mayo info@stchristophers.org.uk
Changes to The Policy
This policy is correct as of September 2023. We will regularly review and update this Privacy and Data Protection Statement and will update, modify, add or remove sections at our discretion and in response to relevant changes in legislation.
We will notify you of any changes, either via e-mail or through an announcement on our website and your continued use of our website, any of our services and/or the continued provision of personal information after we have posted the changes to these terms, will be taken to mean you agree with those changes.
How to Complain
We expect to be able to resolve any complaints that you might have concerning our use of your information. Please write to us or call us at:
Information Governance & Data Protection Manager
St Christopher’s Hospice
51-59 Lawrie Park Road, Sydenham
London, SE26 6DZ
Tel: 020 8768 4500
Email: privacy@stchristophers.org.uk
Do you need extra help?
If you would like this notice in another format (for example audio, large print, braille), please contact us as above.
Cookies
The St Christopher’s Hospice website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorised as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyse and understand how you use this website.
These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.
For more details please see our Cookie Policy.



