For more than 30 years, the Motor Neurone Disease (MND) Annual Conference has brought together healthcare professionals, researchers and people with lived experience to share knowledge, explore challenges and strengthen care for people living with MND.
In partnership with
This one‑day conference offers space to reflect, learn and connect, with a focus on the latest developments in MND research and treatment. Topics include advances in genetics, communication technologies and the ethical questions that can arise in care. A defining strength of the day is hearing directly from people living with MND, whose experiences help shape understanding and inform compassionate, person‑centred practice.
The conference is jointly led by St Christopher’s Hospice and King’s College Hospital NHS Foundation Trust.
Join us for a full‑day conference exploring the latest research and developments in Motor Neurone Disease (MND), and how new evidence can support and shape clinical practice.
The programme brings together leading clinicians, researchers and people with lived experience of MND, offering insight into what it’s really like to live with the condition and the challenges faced by those providing care. You’ll hear directly from people living with MND, helping ground learning in real experiences and everyday realities.
You can attend in person or online and take part in an engaging programme of expert‑led sessions, discussion and networking with professionals from across neurology, palliative care and the wider multidisciplinary team.
This conference is designed for healthcare professionals involved in the care and support of people living with Motor Neurone Disease (MND). It will be particularly relevant for, but not limited to:
- Doctors in primary and secondary care
- Consultant and specialist clinicians
- Clinical Nurse Specialists
- Community and District Nurses
- Palliative Care Practitioners
- Speech and Language Therapists
- Physiotherapists
- Occupational Therapists
- Dietitians
- Social workers, counsellors and psychologists
- Chaplains and spiritual care providers
- Qualified care home staff
- Other professionals involved in the multidisciplinary care of people with MND
The conference is primarily focused on professional learning, while also valuing insights from people with lived experience of MND.
This year’s conference will explore the latest research, clinical developments and emerging practice across key areas of Motor Neurone Disease, including:
- Genetics – Advances in understanding the genetic factors involved in MND, including implications for future prevention and treatment.
- Communication – How emerging technologies and tools are supporting communication and helping to restore voices for people living with MND.
- Research Update – The latest research findings and developments from King’s College Hospital and King’s College London.
- Ethical Dilemmas – Ethical issues relating to mental capacity, decision‑making and care planning in MND.
Throughout the programme, you will also hear directly from people with lived experience of MND, who will share insights into the services, treatments and resources that support them and their families.
| Time | Session title |
| 9:00am | Arrival & registration |
| Chair: Dr Cathy Ellis | |
| 9:30am | Welcome & introductions |
| 9:40am | Management of Spasticity in MND Dr Eleonora Bradaschia |
| 10:25am | Ethical Dilemmas Dr Laura Smith |
| 11:00am | Morning break |
| Chair: Dr Emma Hall | |
| 11:20am | Acceptance and Commitment Therapy for people living with MND Prof Rebecca Gould |
| 12:05pm | Communication Richard Cave |
| 1:00pm | Lunch |
| Chair: Dr Jemeen Sreedharan | |
| 1:45pm | Clinical Trials Update Dr Jemeen Sreedharan |
| 2:20pm | Oxford Research Update Prof Martin Turner |
| 3:00pm | Afternoon break |
| 3:30pm | Between Thought and Expression, Lies a Lifetime: The Inner Lifeworlds of MND Prof Andrew Irving |
| 4:15pm | Q&A, reflections, & Close |
